Naps, naps and more naps

Its hard to believe Ava has completed her first week of therapy already. Its  been a lot like being at home except we have a pool instead of a lawn in our garden. Its pretty much rained since we have arrived and its been a case of getting the house sorted, shopping in and making sure Ava's culinary delights are made for her meals. We tested her ketones yesterday and they were 5.3!! That's good for those not sure. A good sign as we have noticed a big reduction in her daily seizures although another problem has cropped up instead.
Ava's therapy takes place 1-5 and hits on a big nap she has at this time. They are going to try to move the therapy 9-1 but to be honest they will hit the same problem. Ava has a big nap in the morning and afternoon. I blame the medication and all the seizures, but whatever is to blame its inevitable that Ava is going to try to nap no matter where we put her therapy. 4 hrs is a long time for anyone never mind a little 2 and a half year old. Problem is though that the naps are preventing her from doing a lot of her tasks in therapy and the more time goes by the more tired she is getting. Lets hope the ride on the air boat through the swamps helps give her a much deserved treat and well needed rest at the weekend.
The left arm cropped up again,this time they said that her ligaments are so tight in her hand and arm that its only a matter of time until it folds into a contorted position. We need a hand/arm brace to prevent this. We already have one so this is going on more often from now on. Such highs and crashes to lows that its little wonder I feel fraught, stressed and down a lot of the time. Lets hope this is our time for better days to come.