Our journey with our baby Ava and her slow development through brain damage and epilepsy
Thursday, 24 October 2013
Beware of the thief in the night
I am sitting here next to Ava who is lay by my side sleeping. I watch her breathing intently. I spent what felt like an eternity this evening watching her as she had a massive seizure. The clock stopped, time stood still and my heart started to race. Panic was setting in but why? I deal with over 30 seizures a day with Ava but this one was different. This one was like all the seizures at once tenfold. Ava was in distress which made the seizure worse. I tried to calm her whilst my body was screaming inside. For the first time in 6 months Ava was given rescue meds to stop this hideous seizure. It took a few minutes to bring her out but it worked. She was still, her eyes staring at me in relief. Her breathing quickened and I had to take hold of myself to prevent another panic. Midazolam is her rescue med and can cause respiratory problems, hence the panic and why I sit looking at my daughter at 11.30 at night, 3 hrs after the seizure and meds were given. Most likely I will still be in this position for hours to come, constantly looking out for the thief in the night who could one day take my baby girl from me. The thief had been forgotten for a short while but his presence sharply felt again this evening. The pain of this knowledge is indescribable, the awareness acute, the tears now sting. Beware the thief, we call him epilepsy.
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