Final Countdown

The last few months have been a whirlwind of fundraising, organising and planning in order to get Ava the care she needs to improve her Global Developmental Delay. I can't believe these are her last few days. She graduates at a huge party tonight with a presentation of her medal and diploma. The first week went amazingly well with her seizures were well reduced. She has improved her head control yet again and is able to recognise almost immediately when she is required to sit up. These may seem small improvements but for Ava and us, her inchstones are mega achievements on her part. Her brain was so damaged by the hypoglycaemia trauma that her cognitive skills take up to 3 or 4 minutes to respond. You can see why a quick recognition is so big. Ava is stronger again and we may be on the recovery road to get back her swallow and improve her oral eating. We even saw her sucking in her sleep! We are really hoping it wasn't a one off but I am thinking if the reflex has appeared once it can again. So many positives from this visit that we have asked for availability in April. Ideally we would come back in November but it is super cold here in winter. I enquired about February and they said the temperature is between -10 and 5°c. Not good for little people with complex needs so through default our next visit will hopefully be April. Week 2 has been a little fraught. Monday started well but on Tuesday I recieved a call, could I come down to the gym. Ava was having lots of seizures and the neuro dr was in attendance. It was decided that Ava would continue her exercises without her suit for the next few days and see how it went. So the new routine began. Ava hasn't slept for the last 4 nights which may explain the sudden jump in seizure activity. One of us takes Ava down to thermo cryo contrast therapy at 7.40am ready to start exercises at 8am. The other takes Molly off to breakfast and we swap half way so myself or Mark can get breakfast before it finishes. Ava gets her massage after her exercises and since crisis Tuesday she has done very well. Its unlikely this visit will see independent sitting due to the blip thanks to her epilepsy; but one things for sure we are well on the way again. Ava having her massage in the pics below.