Nearly half way

Its day 4 of therapy for Ava. She has got used to the routine pretty quick as we expected her to. Everyday this week is pretty much the same. At 8.15am she goes into magnet therapy followed by oxygen therapy at 8.30am. This therapy is different to the one our Dr said no to.Ava just has an oxygen mask on for 15 mins. We then have an hour before Thermo cryo contrast therapy at 9.40am this prepares Ava for her 2 hr intensive exercises in her suit at 10am then she gets whisked off to massage for 45mins. On alternative days Ava will have either speech or manual therapy which I will discuss in a later blog. In general she is finished by 3pm and fast asleep by 3.05pm I am writing this as Ava sleeps in her massage session. We were a little worried the first day in intensive therapy as Ava did nothing but protest and scream the whole time. I spent Tuesdays session with her with a little less protesting and Daddy spent Weds session with even less protests. We dared to leave her with her therapists today (Thursday) and she did excellently. Her therapists adore her and are lovely with her. This means that we have a 2hr downtime now for the rest of the week. They always say the children work better when parents aren't present hmmmm. I know it is very early days but I am sure there have been a few subtle improvements. Disregarding the huge seizure on arrival I am certain these have reduced in number. Not so many myclonics, perhaps half a dozen eye flickers and Jack Nicholson type seizures. (Scary smile) Her left hand seems to be open more and exploring more. I can't comment on her alertness because all this therapy has just wiped her out somewhat. It's like me or you going to the gym 4 hrs a day everyday. Imagine the effect on our bodies!! There are a couple of therapies still to explore and consider adding to the timetable and the whole timetable changes next week. I believe her intensive exercises are to be 8am to 10am!!! Watch this space for the next timetable. Almost half way!!!!