Ava's world

I am 3 and a half, as tall as my older sister, as smart as a button, as chatty as Molly and as happy as can be. My greatest loves are singing, music, lights, sensory spaces, Elmo and most of all my older sister Molly. It will be my birthday soon and my sister says she wants to dance with me, mammy promised she can and went out and got me an upsee. Its amazing. The week before Mollys birthday I walked hand in hand with her for the first time. I love love loved it. My Molly did too. Its what is going to let me dance with her on my 4th birthday. You see, I can't walk yet. I had a very bad time when I was 3 days old and was in the hospital for nearly a month. I jump alot. Mammy, daddy and the Drs call it epilepsy - my sister calls it epsilepsy and keeps getting me purple things! I cant really see very much but I know my favourite voices. If you are one of my favourites you will see my smile - mammy says its beautiful so it must be like my Molly :-) I have been on lots of adventures with my family. We have been on holiday to Malta, Florida and Slovakia. I would say the last 2 were adventures rather than holidays. I know my mammy and daddy wonder a lot about my future and if I should be pushed to my limits. To be honest I would be happy to laze about everyday singing, watching Elmo, Listening to Frozen, chillaxing in my p pod but thats not gonna get me to sit up, hold my head, walk, talk. All the things I would love to be able to do and I kniw Molly is waiting too. Its hard work but I am mainly good at complaining and am very proud of the pet lip I can do but I soon get used to the exercises. Last time in Florida I could hold my head much better and ever since then, therapy hasnt been as such hard work. I do get upset with all the jerks I do. Its hard because one second I am enjoying myself playing or singing the next my whole body jumps like an electric shock. This is annoying because it happens at least 30 or more times a day. How is a girl supposed to learn anything? When I am tired it happens a lot. Mammy or daddy usually snuggle me in to go to sleep. I love that. I even smile when I am going to sleep and sometimes even smile in my sleep. I know that mammy had to work hard to get me to Slovakia by doing lots of fundraising and I hardly got to see her much the last 4 weeks byt I wouldn't be here now if it wasn't for all the people who helped and supported her and I want to say thank you to you all. I promise to work hard and make the most of every second here. Mammy says she will blog a lot so watch this space. Much love Ava Mae Roberts aged 3 3/4